| Aspergers syndrome 19:41 - Feb 9 with 2004 views | Hayesender |
My son has just been diagnosed with this (he's 9) and to be honest with you I know next to nothing about it.
I know its closely related to autism and I know there's a couple of people on here with autistic children, and was wondering where is there a good place to go for information in dealing with it?
Any good webites etc.
Any info would be very grateful |  |
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| Aspergers syndrome on 19:45 - Feb 9 with 1981 views | essextaxiboy |
Dont know anything about it but I have done a few school contracts for kids with it.
Without exception they have all been smashing kids , happy and good fun .
Good luck to you both |  | | |
| Aspergers syndrome on 19:48 - Feb 9 with 1959 views | danehoop |
Hayesender,
I have two boys on the spectrum aged 6 and 8, one high functioning and the other moderate to severe. Best thing I did was get in contact with the National Autistic Society to start reading into what it all meant.
http://www.autism.org.uk/
They cover the whole range of issues from classic Autism through to Aspergers.
Biggest thing to remember at this point is your son hasn't changed one bit since the diagnosis. He is still the same wonderful little boy he has always been. You are now his biggest asset in getting him help and support through his school and the local education authorities. But the support is there and with what can be very minor adjustments this isn't going to be a problem. |  |
| Never knowingly understood |
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| Aspergers syndrome on 19:49 - Feb 9 with 1956 views | Hayesender |
| Aspergers syndrome on 19:45 - Feb 9 by essextaxiboy |
Dont know anything about it but I have done a few school contracts for kids with it.
Without exception they have all been smashing kids , happy and good fun .
Good luck to you both |
Thanks mate. He is a very happy child, and I'm in no way worried about him dealing with this.
Me on the other hand is fecking useless  | |
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| Aspergers syndrome on 19:52 - Feb 9 with 1948 views | waveydave |
http://www.aspergersyndrome.org/Forums.aspx if you look through this site and join the forums I am sure you will find plenty of resources and possibly people who have experienced similiar. The resources section should hold a few links to info
good luck to you and your son [Post edited 1 Jan 1970 1:00]
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| Aspergers syndrome on 20:01 - Feb 9 with 1900 views | QPR1882 |
Hayes you have mail |  | | |
| Aspergers syndrome on 20:17 - Feb 9 with 1843 views | Hayesender |
| Aspergers syndrome on 20:01 - Feb 9 by QPR1882 |
Hayes you have mail |
Thank you all. Your advice is very much appreciated | |
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| Aspergers syndrome on 20:21 - Feb 9 with 1819 views | teachr |
| Aspergers syndrome on 20:17 - Feb 9 by Hayesender |
Thank you all. Your advice is very much appreciated |
Hi I have been a primary school teacher for 10 years and have had a role as Senco (special needs coordiantor). Also there is a QPR fan who I believe works for the Autism society send me a DM & i'll get in contact with him. |  | | |
| Aspergers syndrome on 20:23 - Feb 9 with 1808 views | loftboy |
Have 3 sons on the spectrum, all different, the eldest is 18 was diagnosed at 8, make sure the school knows and get him an statement of educational needs, all 3 of them come across as "normal" at times then suddenly will throw tantrums like no other, smash the house up swear and generally sulk, rule number 1 as long as they aren't hurting themself or others let them ride it out, the more you pander to them the longer it takes to calm down, they like set routines, any change can be a trigger, my youngest breaks everything he has, he loves dancing and plays just dance on the Wii, but for no reason he will throw the controllers in the sink or down the toilet, then he can't play he goes off on one. My middle one George gets a final diagnosis this Tuesday, they think he has aspergers and ADHD, when all 3 go off at once the noise in my house is horrendous, luckily my neighbours know them and are understanding.
My eldest has just started dating a girl from college who is also special needs, he has no understanding of money, what things cost or their value. He has a phone contract capped at 500 minutes and he has used that in a week ringing her up, he can't get his head round that he can't ring for another 3 weeks, all my fault aparantly.
On the plus side he is entitled to DLA at the middle rate which gets him a disabled season ticket, meaning I get mine free as a Carer. ( sorry folks)
The hardest thing we had to do was get in touch with social services, we didnt know they weren't just there to take you kids away! The children with disabilities team at surrey social services have been magnificent, arranging special clubs for him to go to, he was badly bullied in main stream school and some of those kids still I've nearby and call him names, spastic boy is their current favourite, so needless to say he can't go out like a normal 18 year old would which in turn leads to more frustration for him.
We learnt a lot from my eldest and have got in early with getting the younger two sorted out, they are both in specialist language units if a main stream school and are progressing well. My youngest who's nearly 6 is still in Nappys as he also has hyper mobility syndrome which means his ligaments are all soft and he gets really badly constipated, so is on high dosage laxatives which means when he goes he can't control it.
There's probably loads I've missed but please PM me if you need pointing in the right direction on anything. [Post edited 1 Jan 1970 1:00]
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| Aspergers syndrome on 20:35 - Feb 9 with 1763 views | danehoop |
| Aspergers syndrome on 20:23 - Feb 9 by loftboy |
Have 3 sons on the spectrum, all different, the eldest is 18 was diagnosed at 8, make sure the school knows and get him an statement of educational needs, all 3 of them come across as "normal" at times then suddenly will throw tantrums like no other, smash the house up swear and generally sulk, rule number 1 as long as they aren't hurting themself or others let them ride it out, the more you pander to them the longer it takes to calm down, they like set routines, any change can be a trigger, my youngest breaks everything he has, he loves dancing and plays just dance on the Wii, but for no reason he will throw the controllers in the sink or down the toilet, then he can't play he goes off on one. My middle one George gets a final diagnosis this Tuesday, they think he has aspergers and ADHD, when all 3 go off at once the noise in my house is horrendous, luckily my neighbours know them and are understanding.
My eldest has just started dating a girl from college who is also special needs, he has no understanding of money, what things cost or their value. He has a phone contract capped at 500 minutes and he has used that in a week ringing her up, he can't get his head round that he can't ring for another 3 weeks, all my fault aparantly.
On the plus side he is entitled to DLA at the middle rate which gets him a disabled season ticket, meaning I get mine free as a Carer. ( sorry folks)
The hardest thing we had to do was get in touch with social services, we didnt know they weren't just there to take you kids away! The children with disabilities team at surrey social services have been magnificent, arranging special clubs for him to go to, he was badly bullied in main stream school and some of those kids still I've nearby and call him names, spastic boy is their current favourite, so needless to say he can't go out like a normal 18 year old would which in turn leads to more frustration for him.
We learnt a lot from my eldest and have got in early with getting the younger two sorted out, they are both in specialist language units if a main stream school and are progressing well. My youngest who's nearly 6 is still in Nappys as he also has hyper mobility syndrome which means his ligaments are all soft and he gets really badly constipated, so is on high dosage laxatives which means when he goes he can't control it.
There's probably loads I've missed but please PM me if you need pointing in the right direction on anything. [Post edited 1 Jan 1970 1:00]
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Loftboy,
sounds very similar in places with my two and the youngest in particular.
I have had mixed experience with Surrey, but they got the basics right and the schools have been supportive, but their admin and follow up has been awful.
Now have my eldest in mainstream and he is just settling after 6 months. My youngest is at Linden Bridge specialist autism school and that has been a big challenge for him. He was at a mainstream school for about 2 months but they couldn't cope with his needs, but they made him welcome. he has limited speech but keeps saying he wants to go back to "normal school" which is when things really come back to you that your on a different path.
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| Never knowingly understood |
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| Aspergers syndrome on 20:46 - Feb 9 with 1722 views | Gtleighsr3 |
My middle son is Autistic.Knew there was something wrong from an early age but didnt get a diagnosis till 10.He was a "naughty "child at school ,nursery till they learnt this.Seen every doc specialist etc the NHS had to offer before this as well.Had a plan a year in advance for the transition to senior school and all went well for a month until it got to much for him and was suspended.We had said all along main stream wasnt for him but hey what did we know.So he spent most of the next year doing 2hrs a day in asick and naughty kid school unit.Then essex county council saidthere was no where for him in essex and said he would have to board.We got sent to look at 2 schools in Kent,1 in w sussex and 1 next to Rutland waters.All turned him down.Now he goes to a small private school bassed in 2 sites near Colchester and Sudbury.He still has the odd moment as will have for life but after missing so much school got told hes very clever and will walk his GCSES.They are also pushing him towards computers for his rest of the life job as he excels at this.Mate its hard work,you have to fight and fight and fight.We got turned down for 3 statements and got the 4th.Families in focus are superb for advice and will help you fill in all the forms and what you are entitled too.Sorry if ive gone on a bit.Good luck |  | | |
| Aspergers syndrome on 20:46 - Feb 9 with 1721 views | Gtleighsr3 |
My middle son is Autistic.Knew there was something wrong from an early age but didnt get a diagnosis till 10.He was a "naughty "child at school ,nursery till they learnt this.Seen every doc specialist etc the NHS had to offer before this as well.Had a plan a year in advance for the transition to senior school and all went well for a month until it got to much for him and was suspended.We had said all along main stream wasnt for him but hey what did we know.So he spent most of the next year doing 2hrs a day in asick and naughty kid school unit.Then essex county council saidthere was no where for him in essex and said he would have to board.We got sent to look at 2 schools in Kent,1 in w sussex and 1 next to Rutland waters.All turned him down.Now he goes to a small private school bassed in 2 sites near Colchester and Sudbury.He still has the odd moment as will have for life but after missing so much school got told hes very clever and will walk his GCSES.They are also pushing him towards computers for his rest of the life job as he excels at this.Mate its hard work,you have to fight and fight and fight.We got turned down for 3 statements and got the 4th.Families in focus are superb for advice and will help you fill in all the forms and what you are entitled too.Sorry if ive gone on a bit.Good luck [Post edited 1 Jan 1970 1:00]
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| Aspergers syndrome on 20:56 - Feb 9 with 1686 views | loftboy |
| Aspergers syndrome on 20:46 - Feb 9 by Gtleighsr3 |
My middle son is Autistic.Knew there was something wrong from an early age but didnt get a diagnosis till 10.He was a "naughty "child at school ,nursery till they learnt this.Seen every doc specialist etc the NHS had to offer before this as well.Had a plan a year in advance for the transition to senior school and all went well for a month until it got to much for him and was suspended.We had said all along main stream wasnt for him but hey what did we know.So he spent most of the next year doing 2hrs a day in asick and naughty kid school unit.Then essex county council saidthere was no where for him in essex and said he would have to board.We got sent to look at 2 schools in Kent,1 in w sussex and 1 next to Rutland waters.All turned him down.Now he goes to a small private school bassed in 2 sites near Colchester and Sudbury.He still has the odd moment as will have for life but after missing so much school got told hes very clever and will walk his GCSES.They are also pushing him towards computers for his rest of the life job as he excels at this.Mate its hard work,you have to fight and fight and fight.We got turned down for 3 statements and got the 4th.Families in focus are superb for advice and will help you fill in all the forms and what you are entitled too.Sorry if ive gone on a bit.Good luck [Post edited 1 Jan 1970 1:00]
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My eldest was branded a naught boy in primary, at the age of 9 we sent him to the Philip southcote school in Addlestone, it was brilliant, 10 kids to a class and he stayed until he was 16, the school has since turned into a senior school only but still offers the same ratio if staff to pupils (3-1) he now attend the specialist unit at brooklands college in weybridge, gets a taxi there and back and loves it. Surrey employamobility have sorted him out with work experience.
My youngest was born on 31st August, after a lengthy battle with the education authorities we delayed his reception year by a year, he is 18 months behind so if he started a year ago would of been over 2 years behind the eldest kids in his class, all for the sake of being born 3 hours too early, we still have a battle to come as they said when he gets to year 5 he's got to miss year 6 and go to secondary school.
None of my kids sleep very well either and our day starts about 5.30 and ends well past midnight. | |
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| Aspergers syndrome on 21:03 - Feb 9 with 1664 views | Hayesender |
| Aspergers syndrome on 20:23 - Feb 9 by loftboy |
Have 3 sons on the spectrum, all different, the eldest is 18 was diagnosed at 8, make sure the school knows and get him an statement of educational needs, all 3 of them come across as "normal" at times then suddenly will throw tantrums like no other, smash the house up swear and generally sulk, rule number 1 as long as they aren't hurting themself or others let them ride it out, the more you pander to them the longer it takes to calm down, they like set routines, any change can be a trigger, my youngest breaks everything he has, he loves dancing and plays just dance on the Wii, but for no reason he will throw the controllers in the sink or down the toilet, then he can't play he goes off on one. My middle one George gets a final diagnosis this Tuesday, they think he has aspergers and ADHD, when all 3 go off at once the noise in my house is horrendous, luckily my neighbours know them and are understanding.
My eldest has just started dating a girl from college who is also special needs, he has no understanding of money, what things cost or their value. He has a phone contract capped at 500 minutes and he has used that in a week ringing her up, he can't get his head round that he can't ring for another 3 weeks, all my fault aparantly.
On the plus side he is entitled to DLA at the middle rate which gets him a disabled season ticket, meaning I get mine free as a Carer. ( sorry folks)
The hardest thing we had to do was get in touch with social services, we didnt know they weren't just there to take you kids away! The children with disabilities team at surrey social services have been magnificent, arranging special clubs for him to go to, he was badly bullied in main stream school and some of those kids still I've nearby and call him names, spastic boy is their current favourite, so needless to say he can't go out like a normal 18 year old would which in turn leads to more frustration for him.
We learnt a lot from my eldest and have got in early with getting the younger two sorted out, they are both in specialist language units if a main stream school and are progressing well. My youngest who's nearly 6 is still in Nappys as he also has hyper mobility syndrome which means his ligaments are all soft and he gets really badly constipated, so is on high dosage laxatives which means when he goes he can't control it.
There's probably loads I've missed but please PM me if you need pointing in the right direction on anything. [Post edited 1 Jan 1970 1:00]
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That post has just made me laugh, cry and get angry all in the space of 3 minutes.
Thanks for that mate, and best of luck.
Sounds like you have your work cut out, but also a lot of fun with your boys | |
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| Aspergers syndrome on 22:20 - Feb 9 with 1567 views | brewers_hoop |
Best thing from all this is you've got a (reasonably) early diagnosis. My brother was finally disgnoased last year aged 35. Back in the 80s/90s when he was at school they just kept putting him down a class or excluding him and he was bullied by other kids, with me on several occasions having to stop myself weighing in...as I was nine years older (16yo vs 9yo's not really a fair fight).
Totally different but my youngest has Down's syndrome and is doing fine in mainstream school - think prejudices (in London particularly) not as bad as they were 20-odd years ago. Also, system geared up for Asperger's now so much easier to get required help. |  | | |
| Aspergers syndrome on 16:29 - Feb 10 with 1364 views | Pey |
My niece now 8 has been diagnosed Aspergers syndrome three years ago.
Although there are very different variations it often comes with a very strong sense of highly intellectual.
She fares very well with structure and stability in her life provided by parents, uncle, grandparents, teacher and neighbors.
We all have been to information meetings about asperger syndrome as i reckon they will have in England too.
I got used to be careful with her in promising things, cause she will get an outburst because she can't comprehend with someone telling one thing which is not going to happen due to circumstances.
She sometimes needs more explanation of why things happen in life in general then her twin sister.
Wish you all the best in the world Hayesender with your son.
I can recommend the movie "Adam" from 2009, not that your son is or will be the same, but it will give you more an idea of Aspergers syndrome.
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| Aspergers syndrome on 16:36 - Feb 10 with 1352 views | Landofoz89 |
Best of luck hayesender.
We all moan about rangers, but your immediate family is more important than anything. |  |
| Meet me by the railway track |
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| Aspergers syndrome on 16:50 - Feb 10 with 1337 views | AgedR |
My son has autism. After the Soton game I said, "you don't have to keep going if you want". His reply, "don't be daft Dad, we are QPR".
I nearly cried.
Send me a personal message if you want some info.
My son is the dogs bollocks and autism/asbergise is cool. |  |
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| Aspergers syndrome on 18:23 - Feb 10 with 1250 views | Hayesender |
Thank you all for your replies.
I find the main issue with my son is mixing with other children. If he knows the other child well he's fine and will get involved. As soon as a child he doesn't know comes in to play he goes into his shell and either wants to go home, or will cling.
He also has little tics, which get better or worse depending on the situation, or if he's excited about something.
But mainly he's a very happy boy, and I wouldn't change him for the world | |
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| Aspergers syndrome on 19:05 - Feb 10 with 1197 views | danehoop |
| Aspergers syndrome on 18:23 - Feb 10 by Hayesender |
Thank you all for your replies.
I find the main issue with my son is mixing with other children. If he knows the other child well he's fine and will get involved. As soon as a child he doesn't know comes in to play he goes into his shell and either wants to go home, or will cling.
He also has little tics, which get better or worse depending on the situation, or if he's excited about something.
But mainly he's a very happy boy, and I wouldn't change him for the world |
Hayesender,
same for my eldest. From being a really bright and bouncy little boy with children he knows he completely clams up with any new comers who join his group. His last school got around that by making him the buddy for all new arrivals. So he had a clear purpose and responsibility (which he took very seriously) and found it easier to help the new kid. Now we have arrived back in England the poor lad is going through some massive transition issues and was really struggling to fit in. Suddenly after 6 months (and me looking to put him in a private school) he has got comfortable with his new surroundings and new friends. Still a long way to go, but his grades and comprehension of what is required of him have rapidly improved.
Takes time and finding the right strategies and prompts to help him know what to do in a new scenario. We now look to always prepare both boys ahead of any major new circumstance and wherever possible introduce any new child on a one on one basis in a controlled environment where our sons are happy/familiar.
Little steps, but it comes together. | |
| Never knowingly understood |
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| Aspergers syndrome on 19:30 - Feb 10 with 1160 views | coldchilling |
Hi know how you must be feeling right now. Our little boy is 5 shortly and was diagnosed last year after several problems at nursery with spitting and hitting out at other kids. Regrettably the lack of understanding and support he got from a key worker there who actually had an older autistic boy of her own made the situation worse. When he had support and encouragement it was a totally different matter and he was very social able. Having started main stream school reception year last September he has had a great backing from early years (part of East Sussex cc). His and our particular key worker was just fantastic and told us he was very unique and probably milder aspergus than others. She didn't push us to get him statemented and this seems to have paid dividends. At times yes he does stand out from others with some of his querky behaviour but he is generally very polite and social able with everyone he meets (sometimes to the extreme). We have some very difficult situations with him at home and out sometimes but being positive around him and encouraging his interests has really helped. We are only just learning ourselves and understand this will be a long road. In some ways you shouldn't think or act any differently but understanding routines and diversion does help. Good luck |  | | |
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